I had a really tough time getting out of bed this morning. And since I was already running late, I emailed my boss to let him know I would be working from home. It's nice to have that option. I hate to use it, but it's there when I need it.
I spent a good portion of the day on the phone with the SDS pharmacy, Patient Advocacy Foundation, my insurance company, and my sleep doctor. Turns out the claim for Xyrem was declined because insurance asked for more information and the doctor hasn't been in the office all week.
Regardless, the pharmacy got me enrolled in a coupon program through the manufacturer so that I pay $35 to get the Xyrem, even if my insurance won't pay for it. I set that up and it should be here on Friday.
That said, they're still going to work on getting my insurance to cover it by getting the doctor to respond. But at least this way I'll have something to try without waiting another month for people to get their ducks in a row.
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